Unverified non-profit organisation

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SMA is a form of neuromuscular disease. Many victims are young children who are severely disabled / medically fragile and require specialized medical care and advanced medical equipment. Families of SMA (Spinal Muscular Atrophy) Charitable Trust (“FSMA”) was established in 1998 to provide innovative and direct assistance, medical and para-medical equipment, as well as related genetical therapies to relieve hardship of patients suffering from SMA and their families.

Mission : the “relief of hardship and suffering of patients afflicted with Spinal Muscular Atrophy (SMA) and their family members”

Objectives:

i) To provide practical and emotional support to patients with SMA and their family members in order to facilitate proactive health management as well as aggressive medical intervention to save lives;

ii) To provide support services, donation and/or free loan of medical equipment and other para-medical items to needy SMA patients and their families so that they can continue to seek proper medical help and be able to face challenges associated with SMA;

iii) To manage a Central Registry in Hong Kong of SMA patients for the enhancement of co-operation with health sectors and to serve as a research base to find further treatment strategies and cure;

iv) To promote public awareness, understanding and education of SMA and the plight of afflicted patients & families.

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